On November 25, 2006, 14 affected persons and 6 relatives met in Lampertheim to found the “German Syringomyelia and Chiari Malformation” association.
The DSCM is a non-profit self-help organization at federal level. Their primary goal is to help and support each other. We would like to encourage you to contact us via the addresses provided. We all know how difficult it is to be alone with this diagnosis, with questions and fears. Have the courage to talk to us.
What we have set ourselves:
Promoting the establishment and maintenance of supra-regional and regional self-help groups. Advice and promotion of exchange between patients and their relatives. to provide assistance with difficulties with insurance companies, authorities, employers and in the family. To inform the public and the responsible authorities about the clinical picture and the situation of people with syringomyelia and/or Chiari malformation and their relatives. Suggestion, preparation and organization of information events for patients, doctors and interested parties. The exchange takes place primarily at regional meetings or at meetings of the individual local groups. Experience has shown that friendships develop at these meetings and it is not just medical matters that are discussed. This is particularly important if those affected experience little contact and understanding from their fellow human beings due to their physical limitations.
Financing:
The association is run on a voluntary basis by patients and relatives and is financed by membership fees, donations and funding from health insurance companies.